My Vulvodynia

My entire life revolves around my vulva. I open my eyes around 7:15 every morning and wait for the burning to begin. Then I think "is it going to be a good day? Is it going to be a bad day?" and I wonder how my vulva will control the things I need to get done in the following hours.

Living with vulvodynia is a fucking nightmare. I have never let something control me so much other than my addiction and alcoholism. You know when you have had a terrible day and you just want to go to bed because you have hope that tomorrow will be better? There is no hope with vulvodynia. Tomorrow the burning and itching may be tolerable for a few hours, and it will allow you to laugh and temporarily enjoy life until it comes back with a fiery vengeance and reminds you it hasn't left. Or tomorrow may be so painful you can barely stand and are scrambling to get out of work to have a complete melt down.

The advice I get from people is one of the most irritating parts (besides the constant anal and vulvar and vaginal irritation!) "Maybe you have a yeast infection?" "Maybe you need to change your detergent?" After living with this for 3 years they don't think it is possible that I haven't exhausted all my possible options?

I understand that it is hard for people to empathize and sympathize with this condition. It causes the biggest amount of stress in my life and I am left to think about how life would be if I didn't have to live with this.